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Latest from the Blog

Crossing America for a Cure

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Al DeCesaris completes his 1,900-mile East Coast run to raise money for Sturge Weber research. Read about his incredible journey! READ MORE

Ida & Jenna on WBALTV

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Ida & Jenna were on WBALTV to talk about the latest breakthroughs in the fight against Sturge-Weber Syndrome.  Dr. Comi, from the Kennedy Krieger Institute, expressed her thanks to the Heck family for... READ MORE

2015 Bands on the Bay

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Welcome to the 10th Annual Bands on the Bay! Planning is well underway for the 2015 Bands on the Bay event. We reached a milestone — its our 10th anniversary. Last year marked a... READ MORE

The Cause is Found

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  The DeCesaris & Heck families are extremely proud and excited to announce that Dr. Anne Comi, director of the Sturge-Weber Center at Kennedy Krieger Institute, HAS DISCOVERED THE CAUSE OF STURGE-WEBER SYNDROME!!!... READ MORE